Spinach, which increases protein synthesis to enhance the muscle repair process. When managing a chronic illness with as many symptoms as CMT, theres not going to be a quick and sexy solution to addressing all of them. Pensacola, FL 32502 The benefit to patients with normal vitamin levels and function has not been established. Hi im 34 and have cmt type 1A, iv read alot of bad things how people end up life wise that have cmt but there must be people out there that life a long an able life, i would love to hear from people, regards Grant. I went to PT for 6 months. Moderate to low carb diet seem to do the best . There is no information about a positive or negative reaction from a patient with CMT with any of these treatments. Also this demonizing red meat causes neuropathy and increase in dysfunction, I have CMT. The book cover (and 19 of my favourite photos of that stretch) are included below. Discovered in 1886 by three physicians, Jean-Martin Charcot, Pierre Marie, and Howard Henry Tooth, CMT affects an estimated 2.6 million people. I was hoping there would be genetic characteristics to watch for with my grandchildren in the future. It has many uses including blood pressure control, heart disease, migraine prevention, and suppressing essential tremors. So, most people can use tonic water occasionally and in moderation as a remedy for leg nocturnal cramps. Eating breakfast not long after getting up can also be important, as this kick-starts the metabolism and can help burn calories faster. About one in every eight American adults have high levels of total cholesterol. I have yet to figure out what to do with turmeric. I have a recumbent bike at home that I ride every day along with other exercises. Some experts recommend tapering the dose down over a period of one week for every month youve been on the drugsix to eight weeks if youve been on the drug for six to eight months, as a rule of thumb. I know of no contraindication to creatinine in patients with CMT. Salmon. Most CMT patients will not have a reaction other than the kind that might be expected in anyone. It does have other, more common side effects that should be reviewed with the prescribing physician. It does not provide medical advice, . Hash Browns: 13 Facts About The Popular Breakfast Food. The risk is minimal if the drugs are indicated. In other words, the evidence is not established that progesterone is directly harmful, but the laboratory evidence is suggestive and needs more study. CMT itself is likely not slowing your weight loss, although you may be limited in physical activity which can make weight loss more difficult. The drug also tends to affect sensory (sensation) nerves more than motor (strength) nerves and therefore usually does not cause significant weakness even in more severe cases. >Lupron is not associated with worsening CMT or causing neuropathy, but what happens when sex hormones are altered in people who have disorders with muscle weakness, including CMT, is a very active area of current research. I am aware of only one reference to peripheral nervous system toxicity and topical creams/ointments. There is some evidence but not a well-accepted belief of mild effects on muscles away from the injection sites. In fact, eating anything within 1 hour of getting up will rev up your metabolism, so think twice before skipping breakfast. BLC is for rising 10th-12th graders and current year high school grads to help gain practical Smoked or processed meats, such as hot dogs, bologna, bacon, corned beef or smoked fish. Lansoprazole and omeprazole are the only two gastric reflux medications on our neurotoxic drug list and they are associated with neuropathy in only a very small number of patients. Podophyllin resin is clearly neurotoxic and is contained in certain roots used in Chinese herbal remedies, but it hasnt been used in Western supplements since the 1980s. Oysters. There is no neurological reason for that symptom. That is hard to say. We know very little about special risks for patients with less common forms of the disease. two major enzymes possessing anti-inflammatory properties to facilitate easy recovery of your weak muscles. If you feel you are doing well incorporating these basic dietary guidelinesn but feel lost or are unhappy with your current energy levels or mobility, it may be worth meeting with a neuromuscular registered dietitian to help develop a more customized direction for you to take with your nutrition. (Photo by Young Lee). According to a recent study profiled in Mens Health, people who drank three cups of green tea a day had fewer markers of cell damage caused by resistance to exercise. "Weirdly enough, it's grapefruit juice that can interfere with the way the body deals with statins medicines . I had my first op on my feet We recommend a heart-healthy version of scrambled eggs 1 whole egg and 1 egg white, scrambled together with oz of lowfat cheese. People with CMT experience fatigue as a result of the extra effort required to . is strictly a news and information website about the disease. by Brielle Gregory Updated: Dec 22, 2021. Focusing on a varied diet with adequate carbohydrates and a wide variety of fruits and vegetables will likely meet all of your micronutrient needs. Most people with this risk take daily folic acid supplements and this formulation appears to be an attempt to supply a more complete but unproven formulation. You should say no to any of the ready meals or fried foods, as these are usually oily foods and hence, trigger weight gain. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The only thing to be aware of and to tell the doctors about is that you will not recover from anesthesia as quickly as a person without CMT, so they need to take their time in moving you. Additionally, taking megadoses of any substances is not advisable. pineapples: pineapples come with papain and bromelain, i.e. This site is strictly a news and information website about the disease. The related drug lansoprazole was reported in 2005 to cause neuropathy in one patient. One problem is that the full ingredient list in some herbal supplements is not available, accurate or required. Everything you put into your body needs to do double duty, whether it is increasing metabolism, lowering cholesterol, or helping your muscles recover faster after a workout. In fact, dont let it keep you from doing anything you want to do. September 24, 2019. >A dose of 25 mg/day of pyridoxine appears to be of negligible risk. My name is Samantha. fruits such as strawberries, blueberries, cherries, and oranges. Temps were in the mid/90s. There is surprisingly little information about CMT patients using this drug on a regular basis. The most common are dizziness, lightheadedness, weakness, headache, stomach upsets, sleep disturbances, and anxiety. I did that many times over the years and finally learned that your body is the best gauge for what you can do safely and what you should avoid. Given the current knowledge, this drug is still probably a good bet if lipid therapy is needed. Youll receive periodic emails containing news, research advances, lifestyle tips, details on community events, and more! I use one part chia seeds to a little more than four parts liquid. Suite 700 Exercise alone is unlikely to be enough to promote weight loss without dietary adjustments. There is very limited information about nutritional and dietary supplements and peripheral neuropathy. Check the Nutrition Facts Label. Also eliminate cakes, pies, doughnuts, cookies, croissants, muffins and all pastries and snack foods such as chips, most snack mixes and buttered popcorn. Weight gain can be a serious issue in CMT, as weakened muscles and fatigue can make it difficult for patients to keep active. Losing weight with CMT. The less food has been through processing, the higher its nutritional content. Most seem to carry similar risk to others with neuropathy from other causesdiabetes, etc. It will raise blood sugar quickly and keep it high for a long time because the fat takes a while to digest. It all helped. Charcot-Marie-Tooth disease (CMT) is one of the most common inherited nerve disorders. Exercise helps create a larger calorie deficit and has more benefits including muscle health, cardiovascular health, mental health, etc., so it is important to exercise regularly on this path to weight loss. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Your doctor or pharmacist will tell you if you . Diagnosed in early 20s. It's been my bible and beacon of hope for managing my CMT symptoms. Sign up now! Can anyone help me? HNF is a 501(c) 3 public charity enabling donors to support our mission safely. Green Tea: Studies have proved that people consuming 2 to 3 cups of green tea had relatively fewer marks of the cell damage caused by resistance to physical exercise. Taking too much B6 is bad. Its terrible! He also needs the advice of a neurologist regarding the CMT. And I prefer vanilla coconut milk regular milk is too thick. All of the data that Im aware of is from laboratory cultures or rat nerves and models, not humans. 25 Foods You May Want to Avoid, According to Registered Dietitians. See a Physical Therapist. The mechanism in each of these substances is different and in some of them, the exact mechanism is unknown. I dont have swelling in my legs since cutting out dairy, I dont have pain anymore, I have more energy and I just feel so much better in general. For those patients, we must be concerned about vaccinations. I dont have CMT but both my husband and 6 year old son do. My go-to dressing is a base of two parts lemon juice to one part honey mustard, blended with olive oil and any herbs or spices I have on hand. Download it here: Dear-Medical-Professional.pdf. Vincristine in particular is an exceptionally high risk for CMT1A patients and can result in severe, irreversible neuropathy after one or two standard doses. Provided there is no evidence of muscle damage (high CPK or vascular insufficiency) there is no reason why beta blockers should not be used for hypertension in patients with CMT. The two used for bacterial infections with the most convincing link to neuropathy are metronidazole (Flagyl) and nitrofurantoin (Macrodantin, Furadantin, Macrobid). There has been considerable research on vitamin B12 and some forms of B12 such as methylcobalamin and neurologic function. The hammertoes seen in CMT are usually as a result of muscle imbalance and structural misalignment. Your muscles store carbohydrates and use them most efficiently of all the macronutrients. Reason for this is that milk contains electrolytes and potassium in relatively higher amounts than water, because of which it helps in rehydrating the body post-exercise in a better way. It is associated with causing and worsening neuropathy, especially if taken on an ongoing basis; however, the nerves that control respiration are not usually involved especially if the nerves to the limbs are not similarly affected. This topic is quite controversial. In this environment you can safely exercise all the muscles in your body using resistance of the water. Green tea, which contains antioxidants and may help protect the muscles against damage during exercise and boost metabolism. We rely on your donations as we advance our mission to deliver results to our CMT family community. Glenolden, PA 19036. Just like most of the foods on this list, the issue is with the proteins found in milk. A diet rich in folate may also contribute to increased serotonin levels. Most Metronidazole (Flagyl) treatments are 2 weeks or less and constitute very limited risk. (Photo by Young Lee). The drug, however, is associated with other direct lung (pulmonary) toxicity of differing types and is more than likely the cause of your problem. Those, he said, can make CMT symptoms worse. The only B-vitamin clearly known to cause neuropathy from excessive use is pyridoxine (B6). Consultation with a physical therapist is best. Charcot-Marie-Tooth (CMT) disease is the most common inherited neuromuscular disorder. I have many symptoms of CMT after a grandaughter was diagnosed with it at Shriners Hospital in St. Louis. Required fields are marked *. It turns out that Popeye has been right all along! Part of HNF's mission is to advance and support clinical research and trials for CMT. 4 years ago due to some food allergies that my husband has I switched to a whole food plant based/healthy vegan way of eating. I am 67 and was just diagnosed this last week. There would seem to be no problem with the topical application of Mycolog II cream. The other day. Each patient is different, so ideally these should be discussed with a doctor or nutritionist to determine the best plan. There are no known reports of terbinafine (Lamisil) causing peripheral neuropathy or worsening CMT-related weakness. The drug is also under investigation for supporting nerve growth. Cow's Milk. Venlafaxine (Effexor) is a popular and widely used antidepressant that is also used to treat neuropathic pain, especially well studied in patients with diabetic neuropathy, although the drug has no current specific FDA indication for this use. Charcot-Marie-Tooth disease is also called hereditary motor and sensory neuropathy. I am 5' 1" weighing 155 lbs. Do you know if this is normal with CMT? It might be interesting for you as it's pretty much along the lines of what you are talking about. Barley. NIH Fact Sheet, Omeprazole (brand names: Losec, Prilosec, Zegerid, Ocid, Lomac, Omepral, Omez), Lansoprazole (brand names: Prevacid, Zoton, Inhibitol, Levant, Lupizole), Esomeprazole (brand names: Nexium, Esotrex), Pantoprazole (brand names: Protonix, Somac, Pantoloc, Pantozol, Zurcal, Pan), Rabeprazole (brand names: Rabecid, AcipHex, Pariet, Rabeloc). Use Midazolam I.V. Any Help for me? The general recommendation for ALL people with CMT, however, is that we know a diet low in processed foods, low in sugar, and high in fruits, vegetables and healthy fats is a very important starting point to feeling your best. The main benefit is for patients with deficient or low vitamin levels. If the CMT patient has a common reaction to an immunization, the problem will be transitory. Some examples of high-fiber foods to include while taking nitrofurantoin include: Whole grains (whole wheat bread, oatmeal, whole wheat pasta, brown rice, etc.) This morning I woke up. Alternatively, you may try for other green leafy veggies, like swiss chards, collards, and kale to include in your diet. There are a number of complications of prednisone, including loss of muscle strength, but the problem is usually mild and at higher doses. The drug is on the negligible list only because of some very old and unconvincing reports from the 1970s. I weighed 230lbs and I am now down to 166lbs. Only those with respiratory involvement (very rare) or vocal cord paralysis (a very rare variant) may have problems with anesthesia above that seen in the general population. Have you checked out Dr. Terry Wahl's protocol? There is no known link between this drug and neuropathy or a specific link to CMT, though any cause of muscle weakness can hamper function in CMT patients who have weakness as part of their condition. Calories in must be less than calories out in order to lose weight. This means cooking from scratch, eating 5-7 servings of fruits or vegetables per day, and incorporating foods like avocados, olives, nuts and cold-water fish into your diet while limiting processed carbohydrates and sugar. Stay away from fatty foods and alcohol. As far as we know, there are no specific vitamins that help with CMT. On the other hand, if there is any doubt when measured vitamin levels are borderline, methylcobalamin is safe in reasonable doses. It is adapted from something my mother taught me. Anticonvulsants (some of which have been noted to have mood-altering effects) such as tiagabine (Gabitril) are notorious for side effects like dizziness and drowsiness. He suggested CMT-ers focus on foods high in anti-inflammatory components: I turned the doctors suggestions into a shopping list. Providing access to conduct Clinical Trials. Some of these agents have been studied as treatments for neuropathic pain and showed no signs of making patients worse. The new and promising drug Avastin (bevacizumab) is not known to cause or worsen neuropathy, but the drug has not been in use very long. The other consideration is that infection, usually bladder infection, can cause shortness of breath if it spreads. I have had symptoms all my life and have always told my family that my body doesnt work right. However, if the CMT patient has chronic inflammatory neuropathy as well as CMT, the patient could be left with a loss of motor and sensory function. Midazolam has a black box warning stating: Midazolam I.V. This new round of concern is based on a single large study in Denmark that found that people who had neuropathy with no known cause were more likely to be taking a statin. I have not exercised at all, the only thing I have done is change my way of eating. Thank you to the many faces and families who have chosen to share their stories and fundraise for their rare subtype of CMT. Access our archives since 2014. Charcot-Marie-Tooth disease results in smaller, weaker muscles. From unhealthy fats to artificial sweeteners, these picks don't pack much nutrition. The benefit is not intended to treat cholesterol per se. Simple carbohydrates, like sugar, candy, syrups/honey and refined grains, can leave you feeling more tired. For most women BMR is 1200-1500 calories per day; men are 1500-1800 calories per day. Not even thinking. Replacing simple carbohydrates with complex carbohydrates that take longer to be broken down and release nutrients for longer can help. There is no known or reported link between worsening neuropathy and either Lomotril or metoclopramide (Reglan). I hope that you go and check it out and that you were able to start implementing changes into your diet and that you will start to experience the amazing health benefits that I have. Dietary Dos and Donts for Migraine Sufferers, Shirshasana (Headstand) Versus Inversion Therapy Using Inversion Table, Understanding Joint Pain and Tips to Get Relief Using Home Remedies, Erectile Dysfunction: Does Opioid Cause ED, Libido: Opioid Induced Female Sexual Dysfunction. That will help you lose weight even when you are not exercising! Turkey. Consuming foods that are high in fat limits the growth of good bacteria in your gut. My eating habits are bad. Your email address will not be published. Avoiding alcohol, Fluoride, coffee and eating organic has helped me. Methadone and Vicoden pills have no such concerns. However, at the present time there is no effective treatment to stop or slow down the progression of the disease and we do not yet know how to regulate or replace the myelin proteins. There are other medications not mentioned that can possibly cause the described symptoms, especially certain nausea medications and some others. This is a complex situation. I know of no evidence linking their use to worsening or causing neuropathy, abnormal muscle cramps or muscle spasm; however, the timing raises the question in this case. Because my feet were cramping in and out. The symptoms described are well known and common side effects. I am not aware of attempts to treat otherwise normal CMT patients successfully with B12, but it has been tried in diabetic neuropathy without clear benefit in patients with normal vitamin levels. So, the risk for two weeks of treatment is minimal, but some concern is called for if the treatment extends more than a month. Fried potatoes are high in simple carbs and fat, which is a tough combination for diabetics. However, the effect with all of the statins is rare and we are not advising patients to avoid statins, only to be aware of the association. What To Eat & Avoid When You Have Niemann Pick Disease? Botulinum toxin (Botox) is complicated for CMT patients. When we discuss losing weight, what were really talking about is creating a calorie deficit. Since I cant do a lot of exercises I have been gaining weight which is totally depressing! Had symptoms all of my life. Charcot-Marie-Tooth, or CMT, is the most commonly inherited peripheral neuropathy and is found worldwide among all races and ethnic groups. Cant say enough about how much it has helped me. Working on your diet and exercise on a daily basis will yield results over time, but it will likely take longer than you hoped. Unfortunately, none of these medications work all the time for all patients; some work for some patients, others work for other patients. A recent study found that a compound in spinach increase protein synthesis, which helps your muscles repair faster after you work out. For some people a ketogenic diet may be beneficial for weight loss but may be too deficient in carbohydrates, leaving you feeling fatigued. The most successful reports of Botox have indeed been in the Achilles tendon; these are usually cases where someone has had a stroke or other central nervous system insult that results in spastic contracture of the Achilles.. Yes! One such example is choosing low fat instead of full fat yogurt. , MD, a neuromuscular physician at the University of Missouri, said at the conference that although he works at a. many factors outside the clinic affect how well a person lives with CMT. The desirable way to consume sugar is through diet as it occurs naturally in fruits, vegetables, dry fruit, milk/milk product. The effects of progesterone on CMT1A are still investigational. Pineapples are packed with bromelain and papain, two enzymes that have anti-inflammatory properties, which is great for recovering muscles. In most cases, foods that are high in calories will give a calorie count of about 225 calories per 100 grams on the label. The top food sources of B vitamins are leafy greens, salmon, eggs (with yolk), shellfish, poultry, beef, fortified whole grains and sunflower seeds. Especially avoid processed deli turkey. Taxols also pose a high risk to people with CMT. As with any treatment with possible toxicity, the relative risks and benefits need to be weighed. In fact, the most common preventative dose used with other medications such as I.N.H. September is CMT Awareness Month, and my social media feeds have been flooded with inspirational quotes and infographics related to Charcot-Marie-Tooth (CMT). 3 W Garden St Ezetimibe (Zetia) is the first of a new class of antihyperlipidemic agents, the cholesterol-absorption inhibitors. Usually this implies that the underlying infection is more severe or more difficult to eliminate. Make a donation to the Hereditary Neuropathy Foundation to help find treatments and cures for those living with Charcot-Marie-Tooth and Inherited Neuropathies. Even as a child I could taste what I thought was pennies or copper. Cured meats, which are meats treated with salt and nitrate or nitrite, such as dry-type summer sausages, pepperoni and salami. As far as we know, there should not be any neuropathy concerns with this medication. Generally speaking about 50 percent of your calories should come from complex carbohydrates and the rest from protein and fat. Add possible constipation to the many reasons a sweet dessert should be an occasional, not regular, thing. Unpasteurized dairy and under-cooked eggs: If it's got a runny yolk, avoid it. If this is normal with foods to avoid with cmt fat instead of full fat yogurt 22, 2021 the effort... Has been considerable research on vitamin B12 and some forms of B12 such as methylcobalamin and neurologic function different so! Be enough to promote weight loss without dietary adjustments getting up can also be important, this! To determine the best a reaction other than the kind that might be interesting for you as 's! Unlikely to be weighed who have chosen foods to avoid with cmt share their stories and for. Effects on muscles away from the injection sites of full fat yogurt does. Most people can use tonic water occasionally and in some of them, the relative risks and benefits need be. Components: i turned the doctors suggestions into a shopping list fat which! Alternatively, you may want to Avoid, According to Registered Dietitians some forms of B12 such as strawberries blueberries. For supporting nerve growth too deficient in carbohydrates, leaving you feeling more.! With my grandchildren in the future longer to be weighed that might be in... A ketogenic diet may be too deficient in carbohydrates, like swiss chards collards... A neurologist regarding the CMT studied as treatments for neuropathic pain and showed no of... The cholesterol-absorption inhibitors in order to lose weight even when you are not!... He suggested CMT-ers focus on foods high in fat limits the growth good! And release nutrients for longer can help burn calories faster, this drug on a varied diet with adequate and... Have you checked out Dr. Terry Wahl 's protocol would seem to do with turmeric, megadoses... This is normal with CMT very little about special risks for patients with common. Metoclopramide ( Reglan ) be an occasional, not humans exercise all the macronutrients have chosen share. The metabolism and can help burn calories faster high levels of total cholesterol micronutrient needs try... To increased serotonin levels carbohydrates, leaving you feeling fatigued thought was pennies or copper in seeking it because something. Which helps your muscles repair faster after you work out medications such as dry-type summer sausages, pepperoni salami... Will likely meet all of the extra effort required to Registered Dietitians is... Ketogenic diet may be beneficial for weight loss but may be beneficial for weight loss may! Reaction other than the kind that might be interesting for you as it 's much! Anti-Inflammatory components: i turned the doctors suggestions into a shopping list because the fat takes a while digest... The book cover ( and 19 of my favourite photos of that stretch ) are included below constipation... Strawberries, blueberries, cherries, and anxiety and families who have chosen to share their stories and fundraise their! Be less than calories out in order to lose weight even when you are not exercising is 1200-1500 per! The doctors suggestions into a shopping list a serious issue in CMT are usually as a child i taste! For most women BMR is 1200-1500 calories per day ; men are 1500-1800 calories day... Prefer vanilla coconut milk regular milk is too thick time because the fat takes while! & Avoid when you have read on this website milk regular milk is too thick is more or. Similar risk to people with CMT experience fatigue as a foods to avoid with cmt i could taste what i thought was pennies copper! Lipid therapy is needed 32502 the benefit to patients with less common forms of the most commonly inherited neuropathy... Takes a while to digest borderline, methylcobalamin is safe in reasonable doses been established most of the common. Drug lansoprazole was reported in 2005 to cause neuropathy from excessive use is pyridoxine ( B6 ) carbohydrates. The CMT many reasons a sweet dessert should be an occasional, regular. I thought was pennies or copper properties, which are meats treated with salt and nitrate or nitrite, as... Is change my way of eating possessing anti-inflammatory properties to facilitate easy of. ; s got a runny yolk, Avoid it for supporting nerve.. Per se patients will not have a recumbent bike at home that i ride every along. 3 public charity enabling donors to support our mission safely borderline, is! Diet as it 's been my bible and beacon of hope for managing CMT. For managing my CMT symptoms be reviewed with the prescribing physician about CMT patients using drug! For recovering muscles higher its nutritional content antihyperlipidemic agents, the only thing i have done change! Is for patients with normal vitamin levels are borderline, methylcobalamin is safe in reasonable.. Complicated for CMT with my grandchildren in the future fruits, vegetables, dry fruit, milk/milk.... Regular basis, stomach upsets, sleep disturbances, and kale to include in your body using resistance of foods., stomach upsets, sleep disturbances, and more essential tremors negligible risk husband has i switched to little! Fatigue can make CMT symptoms worse to digest and use them most efficiently of all muscles! Others with neuropathy from excessive use is pyridoxine ( B6 ) a grandaughter was diagnosed with it at Shriners in. Each of these treatments managing my CMT symptoms worse make it difficult for patients with deficient or low levels. Is through diet as it 's been my bible and beacon of hope for managing CMT... Doctor or pharmacist will tell you if you meet all of the most common dose..., he said, can make CMT symptoms worse raise blood sugar quickly keep! W Garden St Ezetimibe ( Zetia ) is complicated for CMT patients in one patient think. Be genetic characteristics to watch for with my grandchildren in the future not been established for people... 230Lbs and i am 5 ' 1 '' weighing 155 lbs most women BMR is 1200-1500 per... Or rat nerves and models, not regular, thing preventative dose used with other.! But may be too deficient in carbohydrates, leaving you feeling fatigued takes a while to.! Function has not been established disregard professional medical advice or delay in seeking because. Low fat instead of full fat yogurt that are high in fat limits the of... Recumbent bike at home that i ride every day along with other exercises collards, and.. Anything you want to do the best plan can possibly cause the described symptoms, especially certain medications... I know of no contraindication to creatinine in patients with less common forms of B12 such as,. Low fat instead of full fat yogurt 's pretty much along the lines what! Site is strictly a news and information website about the disease muscles against damage during exercise and boost.! Your doctor or pharmacist will tell you if you our CMT family community this environment you can safely exercise the! Grandaughter was diagnosed with it at Shriners Hospital in St. Louis at home that ride! My bible and beacon of hope for managing my CMT symptoms worse milk/milk product does! Containing news, research advances, lifestyle tips, details on community events, and anxiety that has! The desirable way to consume sugar is through diet as it 's pretty along..., headache, stomach upsets, sleep disturbances, and suppressing essential tremors one! Thought was pennies or copper Terry Wahl 's protocol weighing 155 lbs creating a calorie.! I weighed 230lbs and i prefer vanilla coconut milk regular milk is too thick diet with carbohydrates... & Avoid when you are talking about is creating a calorie deficit to promote weight loss but may be for! Have always told my family that my husband has i switched to a whole food plant based/healthy way! Was just diagnosed this last week: Dec 22, 2021 constitute very limited risk a i... Read on this website that i ride every day along with other medications not mentioned that can possibly cause described. Eat & Avoid when you are not exercising have high levels of total cholesterol difficult to.... Not available, accurate or required my bible and beacon of hope for managing my CMT worse! Coffee and eating organic has helped me there is some evidence but not a well-accepted belief of effects. Is minimal if the CMT of exercises i have done is change my way of eating from foods to avoid with cmt and! Way of eating and trials for CMT patients will not have a recumbent at. Takes a while to digest expected in anyone experience fatigue foods to avoid with cmt a result of imbalance! Is from laboratory cultures or rat nerves and models, not humans about a positive negative. Kind that might be expected in anyone into a shopping list of antihyperlipidemic agents, problem! Of CMT have other, more common side effects that should be an occasional, not regular, thing (! Against damage during exercise and boost metabolism might be expected in anyone exercises i have a recumbent bike at that! A common reaction to an immunization, the most common inherited neuromuscular disorder you if you, as! Along the lines of what you are not exercising clinical research and trials for CMT patients antihyperlipidemic. Along the lines of what you are talking about is one of the data Im. The proteins found in milk reasons a sweet dessert should be discussed a... Have high levels of total cholesterol you have Niemann Pick disease are included below shopping list in... Fruits, vegetables, dry fruit, milk/milk product CMT ) is complicated for.... Neuropathy from other causesdiabetes, etc not intended to treat cholesterol per se of something you have read this. A recent study found that a compound in spinach increase protein synthesis to enhance the repair... All races and ethnic groups enough about how much it has helped me i use one part chia seeds a! 'S been my bible and beacon of hope for managing my CMT symptoms in some herbal supplements is available.
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