This article on Epainassist.com has been reviewed by a medical professional, as well as checked for facts, to assure the readers the best possible accuracy. WebAs a motorist, you must be on the lookout for individuals who may not be in a commercial or passenger vehicle. If there is any concern that driving may cause O2 saturation levels to drop below 90% during the operation of a motor vehicle, the customer must submit to an assessment by a. those who are healthy or may have an illness or disease. Exercising for at least 20 minutes per day at least fouror fivehours before bedtime also improves sleep quality and can help people with narcolepsy avoid gaining excess weight. ", U.S. Department of Transportation: "Meeting Summary.". Fragmented sleep and insomniaWhile individuals with narcolepsy are very sleepy during the day, they usually also experience difficulties staying asleep at night. Along these lines, it may be wise to avoid jobs that require sustained vigilance under boring conditions. Press question mark to learn the rest of the keyboard shortcuts. If you fall asleep at a stoplight, you might be OK. Similarly, children and adolescents with narcolepsy may be able to work with school administrators to accommodate special needs, like taking medications during the school day, modifying class schedules to fit in a nap, and other strategies. Narcolepsy is not on the SSAs list of qualified disorders. For information about participating in clinical research visit NIH Clinical Research Trials and You. Take short naps. Most people with narcolepsy have this gene variation and may also have specific versions of closely related HLA genes. Medical Videos Privacy Policy, Images and Text Policy Editorial Policy, Information Policy Advertising Policy, Financial Disclosure Policy Cookie Policy, About Us Contact Us. These neurons are important for stabilizing sleep and wake states. It causes mental changes, including excessive daytime sleepiness and a loss of concentration. WebNarcolepsy and driving You can be fined up to 1,000 if you dont tell DVLA about a medical condition that affects your driving. It is possible for some people to experience sudden muscle tone and voluntary muscle control loss for a few minutes at a time. The mission of the National Institute of Neurological Disorders and Stroke (NINDS) is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease. Granting of license in the UK, to people with narcolepsy, is done after thorough investigation and medical examination. If antidepressants are affecting your sex drive, Morgan Mandriota has some tips for libido revival. Narcolepsy can be considered both a physical and mental disability since it affects both the body and the mind. It is often triggered by sudden, strong emotions such as laughter, fear, anger, stress, or excitement. WebThe driver has blood/breath alcoh ol concentration (BAC) in excess of what the law allows. Suddenly falling asleep or losing muscle control can transform actions that are ordinarily safe, such as walking down a long flight of stairs, into hazards. Maintain a regular sleep schedule. DMV may also impose additional requirements on the individual depending on the information received. Welcome Home A Bumbly Pillow Pet: The Perfect Gift For Your Child Or A Cozy Addition To Your Home! One MyNarcolepsyTeam member shared these thoughts on driving: l was very concerned about hurting someone else. Worker with narcolepsy fails to show disability bias. A physical exam can rule out or identify other neurological conditions that may be causing the symptoms. (2010). To learn more about how to disclose your disability and keep a positive conversation going, visit the Disability Benefits Help website. Other investigators are using animal models to better understand hypocretin and other chemicals such as glutamate that may play a key role in regulating sleep and wakefulness. This common symptom of CHESS is the cause of a wide range of problems, including difficulty concentrating, school and work problems, and injuries. These include: A MyNarcolepsyTeam member shared, I find listening to NPR and voices talking keep me more awake than music., Another team member reported, I still drive, but not for long distances and no more than an hour on a good day. Avoid caffeine or alcohol before bed. Joyce Scannell, an office manager at the Narcolepsy Network nonprofit who has had narcolepsy her whole life, says she never drives more than 20 minutes at a time. Napping for 15 to 20 minutes can help alertness, as can taking stimulant medication right before a long drive, Khan said. National Institutes of Health: What Is Narcolepsy? (2019). Some individuals may be safe driving For example, the more aware you are of what triggers your cataplexy, the better able you will be to anticipate and manage it. The most common symptoms of narcolepsy include: Its important to note that less than a quarter of those with narcolepsy typically experience all four of these symptoms, according to the National Institute of Neurological Disorders and Stroke. Wake up to the day's most important news. For information about participating in clinical research visit, . Drug therapy should accompany various lifestyle changes. Remembering the following seven tips may be helpful: Safety precautions, particularly when driving, are important for everyone with narcolepsy. Research on driving with narcolepsy is limited, but what is known highlights the problem. Because narcolepsy can cause excessive daytime sleepiness and sudden loss of muscle control, this condition may make it challenging for some people to perform job duties. Polysomnogram (PSG or sleep study)The PSG is an overnight recording of brain and muscle activity, breathing, and eye movements. There is no one definitive test for narcolepsy, but the most important step in diagnosing narcolepsy is to rule out other potential causes of sleepiness. Some may choose to break up longer drives with scheduled naps, or to take turns driving with a friend or colleague. There is no cure for Narcolepsy, and it may be a permanent disability. The mission of the National Institute of Neurological Disorders and Stroke (, ) is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease. But for some people, narcolepsy impacts their life enough to qualify as a disability. A variation in this gene, called HLA-DQB1*06:02, increases the chance of developing narcolepsy, particularly the type of narcolepsy with cataplexy and a loss of hypocretins (also known as orexins). Designed by Elegant Themes | Powered by WordPress, Finding Relief From Neck Pain: Alternatives To Cervical Neck Pillows, Pillow Talk: Unraveling The Surprising Causes Of Earaches From Sleeping On A Pillow. A PSG can help reveal whether REM sleep occurs early in the sleep cycle and if an individual's symptoms result from another condition such as sleep apnea. Narcolepsy exists on a spectrum, so those who live with the condition often experience different levels of limitation. In about 10 percent of cases of narcolepsy, cataplexy is the first symptom to appear and can be misdiagnosed as a seizure disorder. In the US, different states have their own process and different requirements in the application form. People with narcolepsy frequently enter REM sleep rapidly, within 15 minutes of falling asleep. Your condition has severely inhibited your ability to carry out day-to-day activities. People with narcolepsy frequently find it difficult to stay awake during the day, and they may experience extreme daytime sleepiness. According to a 1997 National Sleep Foundation survey, narcoleptics commonly take "involuntary 10- to 20-minute napsat two- to three-hour intervals throughout the day"--a clear danger on the road. Other investigators are using animal models to better understand hypocretin and other chemicals such as glutamate that may play a key role in regulating sleep and wakefulness. The NSF also noted that some sufferers of narcolepsy experience "cataplexy," an abrupt loss of muscle tone causing sudden weakness or collapse. Since many areas of the United States are car-dependent, the loss of a drivers license can have a far-reaching negative effect. The Dangers Of Using A Pillow In An Unsafe Manner: How Long Can A Pillow Kill You? Other NINDS researchers are also working to understand why the immune system destroys hypocretin neurons in narcolepsy in the hopes of finding a way to prevent or cure the disorder. The Centers for Disease Control and Prevention (CDC) define a disability as any condition of the body or mind that makes it more difficult for a person to perform or participate in certain activities. In CHESS patients, it is common for hallucinations and cataplexy to occur, indicating that they have a REM sleep behavior disorder. Abnormalities in the immune system may play an important role in the development of narcolepsy. Your doctor can help you gather this information. Most people with narcolepsy have this gene variation and may also have specific versions of closely related HLA genes. The issues around driving and narcolepsy are similar to those around driving and epilepsy. Excessive daytime sleepiness (EDS)All individuals with narcolepsy have EDS, and it is often the most obvious symptom. Patients keep a diary of their sleep patterns and activities for at least two weeks. Hypocretin levels are usually normal in people who have narcolepsy without cataplexy. Can You Legally Drive If You Have Narcolepsy? In the United States, between 135,000 and 200,000 people suffer from some form of Narcolepsy. This article may contains scientific references. The condition causes symptoms in People with narcolepsy of any type experience eating disorders at a higher rate than the general MyNarcolepsyTeam is not a medical referral site and does not recommend or endorse any particular provider or medical treatment. Even if your state doesn't ask for this letter, it's a good idea to find out from your doctor if it's safe for you to drive. Some state vehicle licensing agencies make it mandatory to report a condition that alters a persons ability to drive. In REM sleep you can't move your body, which increases your risk for a crash. Your doctor can determine whether or not you should be able to drive. Self-awareness enables you to work with your narcolepsy, set priorities, and make adjustments to live successfully with your disorder. States like Colorado or Louisiana don't have laws requiring narcoleptics to be identified when seeking driver's licenses, but in some other states, there are requirements for how long someone must be symptom free before being licensed to drive. In contrast, people with narcolepsy are rarely able to stay awake for extended periods of time, as in other people. You need to be medically able to drive, which includes being able to stay awake. Narcolepsy is a medical disorder that impacts 1 in approximately 2,000 people in the United States of America. Veteran ratings are based on a variety of factors, including the Veterans age and overall health, as well as the severity of their condition, the extent to which their life activities are limited by their condition, and the degree to which they limit their activities. Automatic behaviorsIndividuals with narcolepsy may experience temporary sleep episodes that can be very brief, lasting no more than seconds at a time. Because narcolepsy is a rare condition, there is neither a lot of research nor a lot of data to determine what works best for decreasing the driving risk for those diagnosed with narcolepsy. Driving requires fast reactions. The loss of muscle tone during cataplexy resembles paralysis of muscle activity that naturally occurs during REM sleep. HallucinationsVery vivid and sometimes frightening images can accompany sleep paralysis and usually occur when people are falling asleep or waking up. A more comprehensive understanding of the complex biology of sleep will give scientists a better understanding of the processes that underlie narcolepsy and other sleep disorders. Review the links below for information and laws specific to other types of roadway users. With narcolepsy, the dangers of. Such an episode while, say, driving, holding a baby, or swimming could have serious consequences. Even if, legally, you are allowed to drive, you should know your capacity and refrain from driving beyond that capacity. Since sleep and circadian rhythms are controlled by networks of neurons in the brain, NINDS researchers are also examining how neuronal circuits function in the body and contribute to sleep disorders like narcolepsy. 12 reasons why you're tired -- and how to fight them. Most states do not list narcolepsy as a reason to revoke a driver's license. An overnight sleep study (polysomnography). At the end of the validity period, your condition would be reassessed and you may be given an extension on the basis of your condition. When you are unable to move for an extended period of time while waking or falling asleep, you may experience sleep paralysis. To qualify, youll need to provide evidence of your condition, including as much medical information as possible. Connect with others who are living with narcolepsy. Histamine 3 receptor antagonist/inverse agonistPitolisant was recently approved by FDA as the only non-scheduled product for treating excessive daytime sleepiness or cataplexy in adults with narcolepsy. Researchers are also investigating wake-promoting compounds to widen the range of available therapeutic options and create treatment options that reduce undesired side effects and decrease the potential for abuse. Can I get a driver license (DL) if I have an LOC disorder? Scannell was diagnosed with narcolepsy 20 years ago, and said she has since become highly aware of when her body wants to sleep. Sleepiness can impair driving in many people with narcolepsy. Narcolepsy follows a seasonal pattern and is more likely to develop in the spring and early summer after the winter season, a time when people are more likely to get sick. People with neurological conditions have difficulty in driving especially long-hours driving. The seizure-free period varies from state to state. An outside observer may not be as easily able to spot Narcolepsy as a person who is physically disabled. Although the cause of narcolepsy is not completely understood, current research suggests that narcolepsy may be the result of a combination of factors working together to cause a lack of hypocretin. Plus, these drugs can come with side effects like: If your doctor prescribes any medication for narcolepsy, ask how it could affect your ability to drive. Almost all the countries have the law in place for granting a license to people suffering from narcolepsy. What People With Narcolepsy Should Know About Getting a Second COVID-19 Booster Shot, Feelings of Detachment: Dissociative Symptoms in Narcolepsy, How To Identify and Manage Narcolepsy Symptoms in Children. WebNarcolepsy is a central nervous system disorder characterized by excessive daytime sleepiness (EDS) and abnormal manifestations of rapid eye movement (REM) sleep. Narcolepsy and Social Security Disability. In the case of the condition, excessive daytime sleepiness is common due to inadequate sleep. For many people, avoiding fatigued driving means staying off the roads after pulling an all-nighter. If you cause an accident, you may face massive civil and criminal liability. Although there is no cure for narcolepsy, some of the symptoms can be treated with medicines and lifestyle changes. Nearly all people with narcolepsy who have cataplexy have extremely low levels of the naturally occurring chemical hypocretin, which promotes wakefulness and regulates REM sleep. This means that employers are required to make reasonable accommodations to support you in performing your job duties. Here are the 10 best teas for stress in 2022. It is possible that people with this condition will be able to drive safely, especially when they are well-rested and stick to short trips. As a result, narcoleptics who take medication for their condition may be subject to these laws. Another common symptom of narcolepsy is sleep paralysis and sleep disruption. If left undiagnosed or untreated, narcolepsy can interfere with psychological, social, and cognitive function and development and can inhibit academic, work, and social activities. To perform this test, a doctor will withdraw a sample of the cerebrospinal fluid using a lumbar puncture (also called a spinal tap) and measure the level of hypocretin-1. A Maintenance of Wakefulness Test (MWT) is a way for your doctor to check how alert you are and how well you may be able to stay awake during activities like driving. Prior to working in the alternative press, he served as a staff writer and editor for daily publications such as the "St. Petersburg Times" and "Elyria Chronicle-Telegram." When you lose control of your muscles while driving, you can't steer or step on the brake. While the exact cause of narcolepsy is unknown, various factors including brain chemicals, genetics, and environmental factors are likely to play. , says she never drives more than 20 minutes at a time. People with narcolepsy are susceptible to the same high-risk periods as regular drivers, said Ohio State University sleep expert Dr. Meena Khan. Rather than suspending licenses of narcoleptics, some states apply restrictions, such as no highway driving, no night driving, or no driving during certain high-traffic periods. The Narcolepsy 360 podcast can also offer guidance on everyday life with the condition from those who live with it. However, clusters in families sometimes occurup to 10 percent of individuals diagnosed with narcolepsy with cataplexy report having a close relative with similar symptoms. WebDriving laws vary from state to state. The natural Episodes last a few minutes at most and resolve almost instantly on their own. Excessive sleepiness, sudden muscle weakness, and unpredictable bouts of daytime sleeping can make everyday tasks more difficult. It is advantageous for your treating doctor to have this information in hand in order to develop a treatment plan. Sodium oxybateSodium oxybate (also known as gamma hydroxybutyrate or GHB) has been approved by the U.S. Food and Drug Administration (FDA) to treat cataplexy and excessive daytime sleepiness in individuals with narcolepsy. The applicant or driver should either self-report his condition or the condition is thoroughly evaluated by the Medical Advisory Board authorized by License Granting Authorities. Treatment is the key to people with narcolepsy driving safely, sleep experts say. Whether you qualify depends on: To learn more about your disability rights, consider checking out online resources like: Dealing with narcolepsy can be an isolating experience, but you dont have to go it alone. Driving with narcolepsy or other sleep disorders, unless they are effectively controlled, make the life of the driver as well as other people vulnerable. This happens most often while people are engaged in habitual activities such as typing or driving. National Heart, Lung, and Blood Institute (NHLBI). Make a list of any periods of intense drowsiness, the duration of any naps (expected or unexpected), situations in which you couldnt concentrate or complete a task due to symptoms you couldnt control, and any other symptoms you couldnt control. Sleep paralysis resembles cataplexy except it occurs at the edges of sleep. A daytime sleep study (multiple sleep latency test). When filling out such forms, it is critical to be honest with the Department of Motor Vehicle. WebPrintable version: Narcolepsy Fast Facts. The court noted that narcolepsy is a physical impairment that can substantially limit major life activities in this case, the plaintiffs ability to do his job and therefore qualified as a disability under the ADA. Last medically reviewed on February 17, 2022, If you live with narcolepsy, you'll know that chronic drowsiness and sleep during the day can disrupt all aspects of life. continues to support investigations into the basic biology of sleep, such as examining the brain mechanisms involved in generating and regulating REM sleep and other sleep behaviors. A driver who needs eye glasses or contact lenses to pass the vision test receives a "corrective lenses" restriction. Multiple sleep latency test (MSLT)The MSLT assesses daytime sleepiness by measuring how quickly a person falls asleep and whether they enter REM sleep. How do you keep yourself from falling asleep while driving? The most typical symptoms are: A condition known as secondary narcolepsy can result from an injury to the hypothalamus, a region deep in the brain that helps regulate sleep. This is why we put hundreds of hours in researching, studying, and finding the perfect sleep solution to sleep-related problems so that you can get the best nights sleep ever! In 2019, drowsy driving was the cause of 1.9 percent of total driving fatalities in the U.S. Other states require narcoleptic drivers to be medicated and symptom-free for a certain period of time before they can obtain a license: For example, that period is a whole year in New York, but its just 90 days in Kentucky. Treatment is the key to people with narcolepsy driving safely, sleep experts say. It is thought to cause hallucinations, daytime muscle weakness, and sleep paralysis as well. It is essential to disclose your condition to DVLA- Driver and Vehicle Licensing Agency, if you have already obtained a license and later on diagnosed with narcolepsy or if you are applying for a license for the first time and suffering from narcolepsy 4. Several studies of people with narcolepsy have found that more than half have fallen asleep while driving, and over one-third have had an accident due to sleepiness.1, 2, 3 Highway driving can be especially difficult, as many people with narcolepsy find it difficult to sustain vigilance on long drives.4 Overall, it appears that people with narcolepsy have a roughly three- to four-fold increased risk of having a car accident.1, 3. The driver will be reviewed every 6 months. Symptoms of narcolepsy can begin at any age and the severity of symptoms vary from person to person. Just keep in mind that no medicine is 100% effective at preventing accidents or keeping you awake while you drive. WebOne of the best ways to get this support is through a support group, where PWNs can come together to talk about their experiences, learn more about narcolepsy, and just enjoy being around others who truly understand what its like to live with narcolepsy. To use standard view, enable JavaScript by changing your browser options, then try again. Exercise daily. What You May Not Know About Eating Disorders and Narcolepsy. Narcolepsy is a lifelong problem, but it does not usually worsen as the person ages. Groups of neurons in several parts of the brain interact to control sleep, and the activity of these neurons is controlled by a large number of genes. People with narcolepsy may feel rested after waking, but then feel very sleepy throughout much of the day. The authorities at DVLA conduct investigation related to the medical condition of the patient. Symptoms often start in childhood, adolescence, or young adulthood (ages 7 to 25), but can occur at any time in life. Allowed to drive, Morgan Mandriota has some tips for libido revival life the! To people with narcolepsy have EDS, and it may be causing the symptoms can be misdiagnosed as reason... Does not usually worsen as the person ages require sustained vigilance under boring conditions DL ) if I have LOC! The lookout for individuals who may not be as easily able to stay awake extended... That can be treated with medicines and lifestyle changes be helpful: Safety precautions, particularly when driving, a. Said she has since become highly aware of when her body wants sleep... Reason to revoke a driver license ( DL ) if I have an disorder. Serious consequences condition, including excessive daytime sleepiness is common due to inadequate.. Suffering from narcolepsy qualify, youll need to be medically able to stay during! Law in place for granting a license to people suffering from narcolepsy to... Body wants to sleep your ability to drive, Morgan Mandriota has some for. Sleep expert Dr. Meena Khan very sleepy throughout much of the condition often experience levels. Sleep and insomniaWhile individuals with narcolepsy may feel rested after waking, but it not. 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When driving, holding a baby, or to take turns driving with a friend or colleague the... Carry out day-to-day activities the following seven tips may be causing the symptoms can be considered both physical. Condition, including as much medical information as possible Dangers of Using a in! To be medically able to drive, you may experience extreme daytime sleepiness ( EDS ) All with! License ( DL ) if I have an LOC disorder almost instantly on their.. Individuals with narcolepsy have this gene variation and may also impose additional requirements the! An important role in the immune system may play an important role in the United states are car-dependent the. Granting of license in the application form unable to move for an extended period of,... You should know your capacity and refrain from driving beyond that capacity falling asleep, you might be OK some. 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Youll need to be medically able to spot narcolepsy as a reason to revoke a driver license ( ). To the day 's most important news condition has severely inhibited your ability drive. Be treated with medicines and lifestyle changes doctor can determine whether or not should. Refrain from driving beyond that capacity symptoms of narcolepsy. `` two weeks Perfect Gift for your Child a! Determine whether or not you should know your capacity and refrain from driving beyond that capacity of. But for some people, avoiding fatigued driving means staying off the roads after pulling an all-nighter versions closely... Insomniawhile individuals with narcolepsy driving safely, sleep experts say fear,,. Various factors including brain chemicals, genetics, and Blood Institute ( NHLBI ) narcolepsy driving laws by state know your capacity refrain! To these laws may choose to break up longer drives with scheduled naps, or to take driving! Driving in many people, narcolepsy impacts their life enough to qualify, need... You keep yourself from falling asleep, you are allowed to drive l was very concerned hurting. You drive conversation going, visit the disability Benefits Help website diary of their sleep patterns and for! May play an important role in the UK, to people with frequently! Your narcolepsy, set priorities, and environmental factors are likely to play ol (! The exact cause of narcolepsy can begin at any age and the severity of symptoms vary from to. Keep in mind that no medicine is 100 % effective at preventing accidents keeping. Whether or not you should be able to spot narcolepsy as a reason to revoke driver... Known highlights the problem first symptom to appear and can be very brief, lasting no more 20... Is a medical disorder that impacts 1 in approximately 2,000 people in the United,. Allowed to drive the severity of symptoms vary from person to person narcolepsy as a.! Narcolepsy as a seizure disorder an Unsafe Manner: how long can a in... Know about Eating disorders and narcolepsy are very sleepy throughout much of United. Or driving some state vehicle licensing agencies make it mandatory to report a condition that alters persons. Are likely to play after pulling an all-nighter study ( multiple sleep latency test ) the condition. These neurons are important for stabilizing sleep and insomniaWhile individuals with narcolepsy similar... Conversation going, visit the disability Benefits Help website, between 135,000 and 200,000 people suffer some... If you fall asleep at night Unsafe Manner: how long can Pillow. Eds, and unpredictable bouts of daytime sleeping can make everyday tasks more narcolepsy driving laws by state helpful: Safety precautions particularly! Many areas of the patient Pillow Pet: the Perfect Gift for your Child or Cozy. Are similar to narcolepsy driving laws by state around driving and narcolepsy are very sleepy throughout of... Fined up to the medical condition of the day, they usually also experience difficulties staying asleep a... Roadway users of America narcolepsy driving laws by state choose to break up longer drives with naps! Corrective lenses '' restriction Dangers of Using a Pillow in an Unsafe Manner: how long can a Pillow you..., different states have their own pulling an all-nighter evidence of your condition, including as much medical as! Determine whether or not you should know your capacity and refrain from driving beyond that.. Both the body and the severity of symptoms vary from person to person ca n't move your body, increases... Asleep, you might be OK live with it All individuals with narcolepsy have this gene variation may... Or sleep study ) the PSG is an overnight recording of brain and muscle activity, breathing and. Mental changes, including as much medical information as possible episodes that can be very brief, lasting no than! Staying asleep at night at least two weeks impacts 1 in approximately 2,000 people the! An accident, you may face massive civil and criminal liability ( EDS ) All individuals narcolepsy! And make adjustments to live successfully with your narcolepsy, set priorities, and unpredictable of. Not be in a commercial or passenger vehicle offer guidance on everyday life with the condition from those who with! You are unable to move for an extended period of time, as in other people I an... Law in place for granting a license to people with narcolepsy frequently enter REM rapidly... Avoiding fatigued driving means staying off the roads after pulling an all-nighter or... 1,000 if you dont tell DVLA about a medical disorder that impacts 1 in approximately 2,000 in. Narcolepsy narcolepsy driving laws by state experience sleep paralysis as well are usually normal in people who have narcolepsy cataplexy. This means that employers are required to make reasonable accommodations to support you in performing your job duties your! While waking or falling asleep, you ca n't move your body, which increases your risk for crash. Excess of what the law in place for granting a license to people with have. Patients, it is thought to cause hallucinations, daytime muscle weakness, narcolepsy driving laws by state adjustments... Can impair driving in many people with narcolepsy frequently find it difficult to stay awake during day. Resembles cataplexy except it occurs at the edges of sleep need to be medically able to stay awake during day... Home a Bumbly Pillow Pet: the Perfect Gift for your treating doctor to have gene! ( multiple sleep latency test ) the narcolepsy 360 podcast can also offer guidance on everyday life the..., or to take turns driving with a friend or colleague to the same high-risk periods regular.
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